{"id":349,"date":"2022-01-17T18:40:48","date_gmt":"2022-01-17T18:40:48","guid":{"rendered":"https:\/\/georgenowik.com\/?p=349"},"modified":"2022-01-17T21:18:20","modified_gmt":"2022-01-17T21:18:20","slug":"tourettes-or-not-to-urettes-that-is-the-question","status":"publish","type":"post","link":"https:\/\/georgenowik.com\/index.php\/2022\/01\/17\/tourettes-or-not-to-urettes-that-is-the-question\/","title":{"rendered":"Tourettes or Not To Urettes.  That is the question."},"content":{"rendered":"<h2>&#8211; Or: How I learned to love being the Tourettes jerk who jerks<\/h2>\n<p>Imagine for a moment if you will &#8211; or even if you won&#8217;t &#8211; how a conversation could go bizarrely sideways if someone you&#8217;re conversing with makes a statement requiring affirmation and <em>instead<\/em> you viciously shake your head from side to side.\u00a0 As if to say &#8220;ARE YOU OUT OF YOUR EVER LOVING MIND?&#8221;\u00a0 Or the response was a grunt that resembles the bark of a dog.\u00a0 And not in the good Ozzy Osbourne kind of way.\u00a0 Or, in rare instance, uncontrollable cursing.\u00a0 It&#8217;s not &#8220;Being Andrew Dice Clay,&#8221; it&#8217;s having Tourettes.<\/p>\n<p>None of that is happening on purpose.\u00a0 It&#8217;s an impulse triggered by neurons in the brain to do something involuntary that generally has nothing to do with a situation at hand.\u00a0 And in this specific instance, this is because Tourette Syndrome is a pain in butt.\u00a0 And neck.\u00a0 Also head. And potentially everywhere else.<\/p>\n<p>In a bid to prove that I am not &#8211; in fact- even the slightest bit amusing, this week I&#8217;m going to dive into the topic of Tourette Syndrome and the joy and celebration it brings to existence.<\/p>\n<p>&#8220;But wait, George!&#8221; you are quick to cry out.\u00a0 &#8220;You make it sounds like Tourette&#8217;s is this terrible thing that destroys your body and relationships and prevents you from making friends and destroying your enemies.&#8221;\u00a0 This is also correct.<\/p>\n<p>HOWEVER.<\/p>\n<p>I wouldn&#8217;t change anything about it*.\u00a0 It has shaped the person I am &#8211; for good or for ill &#8211; and continues to have an impact on capabilities that I require for daily function.\u00a0 It also has an effect of interfering with aspects of life that are sometimes inconvenient but REALLY good on the improv skills.<\/p>\n<p>Let&#8217;s wade in.<\/p>\n<p>* except for maybe the minor parts there it destroys the body.\u00a0 that part i could live without.\u00a0 just saying.<\/p>\n<h2>Tourettes? That sounds like a French Word.\u00a0 Or is it a FREEDOM WORD?<\/h2>\n<p>This section relies heavily on data available on the <a href=\"https:\/\/tourette.org\/\">Tourette Syndrome Association of America<\/a> web site.\u00a0 The TSA has been an evolving and informative resource for decades on the subject of what the devil this thing is, why it exists, and ways in which to combat the overall challenges it presents.<\/p>\n<p>Tourettes is categorized as being part of the spectrum of Tic Disorders.\u00a0 Its rarity is quite inflated: it is estimated that 1 in every 160 children in the US has Tourettes, and 1 in every 100 has &#8220;TS&#8221; or another tic disorder.\u00a0 It is differentiated as having a requisite number of both physical and &#8220;vocal&#8221; tics. I&#8217;ll describe some of the more common occurrences as well as some that are less common but very real in my own sphere of life.\u00a0 It&#8217;s my blog and I&#8217;ll write if I want to.<\/p>\n<p>The physical tics can be as simple as eye and nose twitches, body bump evening up, nostril flaring, muscle contractions, and so forth.\u00a0 All very deliberate, all compulsive and involuntary.<\/p>\n<p>The vocal tics are generally described as vocalized sounds.\u00a0 Grunts, barks, clicks, throat clearing, loud inhalations, use of words out of place, and even use of words that are completely inappropriate.<\/p>\n<h2>The swear jar theorem<\/h2>\n<p>In those moments where Tourettes individuals are portrayed in movies or television &#8211; or comedy &#8211; it is generally under the vein of someone swearing uncontrollably.\u00a0 The reality is that roughly 10% of people with diagnosed Tourettes will curse in a fashion that is not of their own volition.\u00a0 As such, this is considered to be The Prototypical Tourettes Symptom.\u00a0 So say we all.\u00a0 Here are a couple of interesting points about that though that I&#8217;m sharing because, again, it&#8217;s my blog and I&#8217;ll write if I want to (o\/` you would write too if it happened to you o\/` ):<\/p>\n<ul>\n<li>Uncontrollable swearing is only 10% of all diagnosed Tourettes patients (i said that already.\u00a0 repetition is not a tourettes symptom, that&#8217;s just me being repetitive)<\/li>\n<li>Loud voracious swearing is considered extremely socially unacceptable<\/li>\n<li>Jumping onto The YouTube, there are a variety of people with Tourettes on camera and being their best selves from all over the world.\u00a0 Of the people I have seen, all their cursings are <em>localized<\/em>.\u00a0 Regional curse words, not just the ones more recognized internationally.\u00a0 <a href=\"https:\/\/www.youtube.com\/channel\/UCc8ose0GSo1fvmAxWCIkPrw\">Lewis Qball<\/a> is an incredible example of this in that he repeats &#8220;Bollocks&#8221; and &#8220;Wankers&#8221; quite a bit because locally those are naughty words. Internationally?\u00a0 Not as much.<\/li>\n<li>All Tourette Tics are &#8220;socially awkward.&#8221;\u00a0 Every single last one of them.\u00a0 Cursing out of place (or in place) is a challenge, but so are abnormal movements.<\/li>\n<\/ul>\n<p>For the 10% of those with Tourettes who do find themselves unable to control cursing, the challenge then becomes navigating through a society that would otherwise <em>really frown<\/em> on that behavior.\u00a0 Moreso than most of the physical tics and other sounds that crop up.<\/p>\n<p>For the other 90% like me &#8211; I only curse controllably &#8211; there are still plenty of opportunities to be socially backwards and inappropriate.<\/p>\n<h2>Getting your freak on in that not-great way<\/h2>\n<p>So think about it.\u00a0 Being about 7 or 8 years old in the 1980s and suddenly having no control over &#8220;a bunch of bad habits.&#8221;\u00a0 Constant throat clearing is driving your babysitter bonkers. Jerking your head forward and backward looks really bonkers. Making your face and nose straighten out unnaturally is &#8230; er &#8230; unnatural. And that&#8217;s just Tuesday.<\/p>\n<p>Having TS in the 80s was a one-way ticket to label-town.\u00a0 Freak was the most common.\u00a0 It makes sense.\u00a0 If the teachers &#8211; or even my own family &#8211; couldn&#8217;t figure out what it is, why would other kids be able to parse it?<\/p>\n<p>Children seem to be kinder now than they once were.\u00a0 That&#8217;s not to say they&#8217;re all sunshine and lollipops because, well, they&#8217;re kids.\u00a0 One of the things that makes it easier today is teacher awareness of things like this.\u00a0 In the 1980s, most teachers didn&#8217;t know what &#8220;A Tourettes&#8221; was.\u00a0 As a result, it became a distraction without a name or a reason. Distractions without names or reasons are generally unwelcome in the 1980s teaching environment and are dealt with accordingly.<\/p>\n<p>Side note: Most of my observations on today&#8217;s classroom are based on what I&#8217;ve seen in person.\u00a0 At least in my region of the state.\u00a0 Children with challenges are handled with compassion and understanding. Almost get a bit dusty thinking about and how much has seemingly changed. I suspect this isn&#8217;t the case nationwide but it gives me hope for a brighter future for so many kids.<\/p>\n<h2>Out of the gifted program, into the dungeon<\/h2>\n<p>Weird, huh?\u00a0 But yes.\u00a0 Some comorbidities of Tourettes can be the presence of ADHD and OCD.\u00a0 As a child, that precise combination gave educators the impression that I was more intelligent than I am.\u00a0 Spent a great summer in an advanced learning program and it was fun!\u00a0 That was also before the physical tics -really- ramped up.\u00a0 Once that took place, stuff went sideways.<\/p>\n<p>I don&#8217;t think I was supposed to see it but I distinctly remember upside-down reading the document on my principal&#8217;s office desk that labeled me as &#8220;Severely Mentally Damaged.&#8221;\u00a0 That label carried through the rest of my public school life and I was put into special needs classrooms in accordance.\u00a0 The best part about it though?\u00a0 Safe zone.\u00a0 The &#8220;Resource Room&#8221; had the one teacher in a building who was trained to work with kids who had special needs. The result?\u00a0 I got to play math games on computers and enjoy downtime.\u00a0 It was glorious!\u00a0 It was a blessing and a curse though, in that it was another thing that set me apart.<\/p>\n<p>I&#8217;m going to gloss over the bullying that came with it other than to mention that it was there. It&#8217;s not worth dwelling on.<\/p>\n<h2>&#8220;She can&#8217;t take much more o&#8217; this, Captain!&#8221;<\/h2>\n<p>The part of my body that has taken the most abuse and overuse over the years is the neck.\u00a0 Head jerks forward and backward.\u00a0 Side to side.\u00a0 Headaches on occasion when they get really bad, but by and large it&#8217;s been the neck.<\/p>\n<p>One of the components of my Tourettes experience is that if a tic can cause pain, then it <em>really <\/em>escalates. A head jerk causing a headache?\u00a0 TEN MILLION HEAD JERKS LATER it&#8217;s time for Advil.\u00a0 Once the headache is gone, the tics subside somewhat.\u00a0 Pain-inducement is really bizarre but another fun day at the office.<\/p>\n<p>But back to the neck.\u00a0 I&#8217;ve already had one cervical spine disc replaced between C5-C6 a few years ago.\u00a0 It&#8217;s this really cool-looking purple titanium smore!\u00a0 I have <em>hardware<\/em> and I&#8217;m .03% on my way to becoming a Terminator.\u00a0 Hopefully the good kind.\u00a0 With muscles and cool shades.\u00a0 But no motorcycle, those things are scary.<\/p>\n<p>I actually thought that a disc replacement might be the kind of thing that caused the neck tics to back off.\u00a0 Yes, I know.\u00a0 I&#8217;m hilarious.<\/p>\n<p>A couple MRIs later as of last week, pretty sure there&#8217;s more on the horizon.\u00a0 To be continued on that front.\u00a0 And the neck abuse continues.<\/p>\n<h2>Wait, so why wouldn&#8217;t I change a thing? Tourettes sounds like it sucks.<\/h2>\n<p>Tourettes, OCD, and ADHD are, at their core, unpleasant.\u00a0 The inability to focus long enough to straighten up a kitchen while simultaneously needing the forks lined up <em>just so<\/em> in the drawer is maddening.\u00a0 That precise combination of what I have has made me into the person that I am today.\u00a0 The coping mechanism that got kids to stop trying to destroy me more than my body was already trying was <em>humor<\/em>.\u00a0 It started small.\u00a0 Memorizing comedy routines by Robin Williams and Bill Cosby*.\u00a0 Learning how to adapt humor to any situation.\u00a0 Self-deprecating jokes made other kids laugh and that was a <em>defense mechanism<\/em> and it <em>worked<\/em>.<\/p>\n<p>That variety of humor adaptability has played into every single day of my life since then.\u00a0 You know the greatest ice breaker ever when meeting someone for the first time? &#8220;Just to address the elephant in the room right out of the gate, if I violently shake my head at everything you say, I&#8217;m not vigorously saying NO to anything.\u00a0 I have Tourettes and its mission is to make everything awkward and you and I are going to tell it to sod right off.&#8221;<\/p>\n<p>(if we ever get in a zoom together for the first time, i promise you we&#8217;re going to have a conversation just like that.\u00a0 it&#8217;s almost rote)<\/p>\n<p>That bit about memorizing comedy routines?\u00a0 That applies to music too.\u00a0 And most things if repeated enough.\u00a0 That is a\u00a0<em>massive gift<\/em> and I am so grateful for it.\u00a0 I don&#8217;t think I would have that gift if not for the unique combination of quirks.<\/p>\n<p>* yes, imagine learning a bunch of comedy routines by someone who it turns out was probably not who\u00a0 they portrayed themselves to be.\u00a0 now imagine having that entire library in your head with instant recall for the rest of your life.\u00a0 whoops!<\/p>\n<h2>Bringing it up a notch<\/h2>\n<p>Why am I relating this really depressing story?\u00a0 Because that&#8217;s the kind of person I am today.<\/p>\n<p>No, but really.\u00a0 I&#8217;m relating the story in this fashion because I feel strongly that it&#8217;s important to know what&#8217;s going on in the head of someone who has this.\u00a0 Not every kid gets through it unscathed.\u00a0 <span class=\"ILfuVd\"><span class=\"hgKElc\">People with Tourette&#8217;s disorder or chronic tic disorder are <b>over four times more likely to die by suicide than the general population<\/b>. Not every kid gets out of this alive.\u00a0 Many kids transition to adulthood and the tics go into remission.\u00a0 Or not, in my case. And others.<br \/>\n<\/span><\/span><\/p>\n<p>Given the percentage of kids who likely have Tourettes or a tic disorder, there is a strong chance that there is a child out there who desperately needs help.\u00a0 Or an ear.\u00a0 Or compassion.\u00a0 <em>Something<\/em> to help them to know that it&#8217;s really going to be ok and how to make it more ok than it is now.<\/p>\n<p>I was extremely lucky by having a mother who leveraged that level of compassion.\u00a0 She was able to get me in to professional help from time to time to help cope with what was going on internally and externally.\u00a0 Strong faith and counseling were key components to <em>still being here today<\/em>.<\/p>\n<p>Not every child has the luxury of parents who get it.\u00a0 Not every child with uncontrollable tics has that support system in place.<\/p>\n<p>So what can we do?<\/p>\n<p>I&#8217;m not entirely sure, to be honest.\u00a0 It&#8217;s something I&#8217;d like to look into somehow.\u00a0 Be a voice to help encourage kids who are struggling with coming to terms with this really bizarre thing.\u00a0 Share with them how I finally figure out how to blend into school life in hopes that it will help them.<\/p>\n<p>The TSA has a variety of support options for getting involved that I don&#8217;t recall seeing before.\u00a0 That seems like a good thing to explore maybe when pandemic thing settle down and more in-person stuff is viable.<\/p>\n<h2>Closing thoughts<\/h2>\n<p>This stream of consciousness has been brought to you by neck pain, headaches, blurry vision, and <em>severe optimistic outlook<\/em>.\u00a0 I still have hangups about meeting people and the first impression it gives.\u00a0 It can be crippling at times but I&#8217;m old enough now to know that there are ways to get around it.\u00a0 It might not be a unique value proposition by any stretch of the word, but it is definitely <em>unique<\/em>. I am who I am today because of it.\u00a0 Someone out there is probably struggling to come to those types of terms and it&#8217;s really difficult.\u00a0 If you happen to be one of the six people reading this and you know someone who could potentially benefit from talking to someone who is going through it, maybe let&#8217;s figure out how to connect.<\/p>\n<p>Until next week!<\/p>\n<p>-= george =-<\/p>\n","protected":false},"excerpt":{"rendered":"<p>&#8211; Or: How I learned to love being the Tourettes [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"footnotes":""},"categories":[6],"tags":[65,67,66,63,64,62],"class_list":["post-349","post","type-post","status-publish","format-standard","hentry","category-general","tag-humor","tag-perseverence","tag-positive-thinking","tag-tic-disorder","tag-tourette-syndrome","tag-tourettes"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Tourettes or Not To Urettes. That is the question. - George Nowik - Voice Actor<\/title>\n<meta name=\"description\" content=\"Tourettes is both a curse and a blessing. No really. Yes, really. While it&#039;s frequently unpleasant, it has some benefits! CLICKBAIT FOR MORE.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/georgenowik.com\/index.php\/2022\/01\/17\/tourettes-or-not-to-urettes-that-is-the-question\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Tourettes or Not To Urettes. That is the question. - George Nowik - Voice Actor\" \/>\n<meta property=\"og:description\" content=\"Tourettes is both a curse and a blessing. No really. Yes, really. While it&#039;s frequently unpleasant, it has some benefits! 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